Sometimes your illness can come on so quickly and deteriorate so rapidly that you are left with hardly any time to prepare. Sometimes you think you have lots of time to make plans and then are surprised when things suddenly deteriorate. If you’ve not had chance to make plans before, now is the time to try while you still have some energy.  Take a look at the section on ‘creating a personal portfolio’ for more information. Sadly, no matter how well you try and prepare for death, the last weeks of life can be a frightening time for you and your loved ones especially ifRead More →

As you approach the last days and hours of your life you will go through a process of withdrawing from the world. During this time a number of changes in your body and mind occur. This section of the website contains information about the dying process, what is happening to you as you withdraw from the world and how you can be cared for at the end of your life. It includes information on: Changes Medication Liverpool Care Pathway for the Dying Patient (LCP) Although this is written about you, we recognise that at this stage in your life you are likely to be tooRead More →

Bleeding at the end of life can occur.  You or your carers may notice mild bleeding from fragile skin or from your gums when you eat or clean your teeth.  There may be bleeding associated with dressing changes.   Sometimes serious bleeding can occur.  The risk of this happening depends on the condition that you are dying from.  Your specialist nurse or doctor will warn you if they think bleeding is a risk for you and give you advice on what to do. For more information on bleeding click here.Read More →

In the last hours or days of life we want to be absolutely sure that you receive the best possible care.  This care includes attending to your emotional and spiritual needs as well as managing any physical symptoms you may have.  We’ve only got this one chance to get it right for you so it’s really important that we don’t miss anything. Having a written down care pathway to follow helps to reduce the risk of missing something that’s important to you and your loved ones and to maximise the chance of you having the peaceful death you hope for.   The Liverpool Care PathwayRead More →

In the last days of life it is likely that you will no longer be able to manage oral medication. Regular medication that you may have been taking for years should have already been stopped. By now you should only be receiving medication that helps to control any symptoms you may have. Unless you are in a hospital or hospice where medication is readily available, your district nurse, specialist nurse or GP will organise a ‘just in case’ box of medication. This is to have on stand by so it is available at short notice if you need it. The medication in the box isRead More →

What is end of life care? There are a number of terms used when describing care that people may need as they approach the end of life.  There is a lot of overlap and often they are used synonymously so it can be confusing. End of life care is about the total care of a person with an advanced incurable illness and does not just equate with dying.  The end of life care phase may last for weeks, months or years. End of Life Care is defined as care that helps those with advanced, progressive, incurable illness to live as well as possible until theyRead More →

Because your gut is now not working properly, you may notice changes in your bowel habit. Constipation is a very common problem and can cause distressing symptoms like abdominal pain and bloating.  It is often aggravated by pain killing medication.  Constipation can also make you feel sick.  You may be given laxatives, suppositories or enemas to relieve constipation. If you are at home your district nurse will help with this part of your care.  If you are in a hospice, hospital or nursing home the staff will help you. You may also notice difficulty controlling your bowels.  This is because the muscles that hold everythingRead More →

In 2008 the North West Strategic Health Authority (SHA) End of Life Clinical Pathway Group (CPG) devolved responsibility for end of life care to the three cancer networks in its region. The Lancashire and South Cumbria Cancer Network established a new group – the Cumbria and Lancashire End of Life Network – to take on this work. This was in recognition that the footprint for end of life care is bigger than that of the cancer service and that end of life care is not just for people with a cancer diagnosis. In addition, the team needed to support the implementation of the National andRead More →

Background Greater Manchester and Cheshire Cancer Network, Cumbria and Lancashire End of Life Network and Merseyside and Cheshire Cancer Network have worked together to develop a North West End of Life Care Regional Facilitators Network. Representatives from each Network have formed a steering group to manage the network into the future. The Network is open to facilitators from all sectors in an end of life care role. Terms of reference have been developed for the network and shared with members. The network was launched on Tuesday 4thOctober 2011 and an event was held in Blackpool where 70 facilitators came together from across the North West to share good practice, networkRead More →

The Six Steps to Success programme is supported by mandatory stand alone education modules which include communication skills, advance care planning and Liverpool Care Pathway for the dying patient training. This education should be arranged at key points along the programme and the delivery of this education is to be agreed in each local area delivering the programme.   It could also include any other education providing theory and underpinning knowledge, for example symptom management. Mandatory Supporting Education 2: Between Step 5 and 6 A workshop must be sourced or provided following the Step 5 workshop and before the Step 6 workshop to deliver education on:Read More →